The month of May was very busy for us and ended at UCD ER! Early May Mel was having some back pain which began with his reaction to sedation in April. Inspite of pain, we prepared for our sons visit beginning May 20. Our Nick arrived after hassles with rental car agency. It was a joyous reunion, tempered by the fact it could be his last visit with Mel. We had a wonderful week, visiting and getting things done like meet and greet with our financial guy, so he knows who he will deal with as our executor. Nick went around my house looking for things to fix and got few nagging things done which helps a bunch. He and I shopped Tuesday and that night began the process of fixing tritip for Mel's military honor ceremony for Thursday. That tuesday night as tritip was on slow smoker getting tender and juicy, Nick prepared a fantastic steak dinner! He is an amazing cook and mostly cooks Keto, a bonus! Rib steaks with a blue cheese mousse topping , delicious along with sautéed mushrooms, and broccoli with Nicks Keto cheese sauce . Delicious !
Wednesday the boys and I completed preparations by setting up tables and sweeping the yard again. Thursday, dawned beautiful, breezy and warm. Mel put on his khaki Navy Chiefs uniform. As the guests arrived, the temperature dropped into mid 60's so jackets were shared and Guests were seated and Mel's life story with emphasis on his military career was read. After photos were taken then the boys and I served tritip with rolls, 4 salads, and cookies. Everyone said it was the best tritip they had ever had, so tender and juicy! Mel enjoyed the ceremony though was tired after.
We enjoyed our precious last few days and Nick flew out for MN and his work, school, and family early Sunday morning.
That Wednesday Mel was due for a CT to determine why the back pain. By that evening, we had a call from our Radiation Oncologists senior resident , stating 2 fractures and advancement of cancer in the L1 vertebra had been found and they wanted us there the next morning to plan and execute treatment 1 of a radiation 5 day plan in attempt to stop the tumor in L1. So Thursday we arrived there around 12, thinking we would get home for a late lunch. Turned out they did planning but machine wasn't available until 5. And oh by the way, we will be transferring him by ambulance to the ER after because we are afraid he is having spinal nerve compression and if radiation irritates that he could be suddenly paralyzed L1 down!
Around 6:30 we landed in the very busy University ER, surrounded by 3-4 nurses and a Dr. Orders came for blood work and MRI. Throughout the next 12 hours he had X-rays and MRI and was visited by orthopedics drs and a spinal surgeon. Then the Attending from general medicine. Through Friday he had another MRI and another CT. More neuro exams and was fitted with a cumbersome brace. He finally was fed around 1, with them finally deciding he did not need emergency surgery for spinal stabilization. I finally hit the road home exhausted and brain fried around 3. A few hours later he transferred to his room. Saturday dawned better. They decided he was not in imminent danger so tried to discharge him. Then found the entire hospital computer system had failed and was down! Ever seen a bunch of 20 something brand new Dr in training scramble to find pen and paper? It was amusing. Finally around 3 we got in our car and headed home. No one knows how his L1 is going to react to radiation or whether it will suddenly swell and put compression on nerves but we will monitor for increasing symptoms. The problem is if it happens he will get immediate high dose steroids, big time causing high blood sugar since his body really does not like steroids ( past experience , it actually damaged his pancreas causing the type 1 diabetes in 1989 during neck surgery). Taking it a day at a time. Will be seeing the spinal surgeon in a few weeks to determine if brace alone will allow healing of fractures and if L1 needs fusion surgery to prevent catastrophic collapse. Fortunately, it was determined by MRI that other than a bit in T12 of cancer, the rest of his upper Thotacic and Cervical spine are ok. Not sure how he would tolerate surgery, but other than his back he seems strong. In fact the ortho and spinal surgeons were very surprised how strong his legs are, which said his seeming neuro symptoms are actually a result of severe pain from mechanical forces of fracture and collapse of vertebra. Time will tell.
Today so far we accomplished a shower ( bet I'm the first naked nurse he ever had!) ROTFLOL
He has eaten and is resting, me too.
Later need to run to pharmacy to pick up 2 RXs which we had some of by put Drs increased dose so I need more.
And that's my May. Sure wish in the early hours of Friday morning I had thought to shout rabbits . Might have further made nurses wonder about the nurse/wife in D10. And maybe my June would be better. Oh well.
Interesting side tidbit. Our nurse thursday night into Friday, was a recent grad of my nursing school! Now that was fun.
Hope this week is a bit calmer and I can get a few catch up things done.
I think of you all daily and sure would rather we be camping but onward we go. His initial diagnosis was May 9, 2013, his birthday and his birthday in 2018 has come and gone and he is still here and for that I am grateful. Just hope we get his back pain under control so he can enjoy life as much as possible.
Velda
PS I'm pretty sure I was late on May 1 saying rabbits, you would think I'd learn!