Update

Talk about anything under the sun! Just remember to be respectful of others.

Update

Postby MandysMom » Sat Dec 16, 2017 3:17 am

If Medicare sends their approval, Mel starts new chemo next Wednesday. This will be a combo of Opdivo and Ivolumab, two of the new immune type chemo in a clinical trial designed to treat people witn rare tumors which have failed other treatment. It will be given by IV, or he may decide to get a port in his chest, as his left arm can't be used and veins in right are getting harder and harder to use. Opdivo will be every six weeks and the other overy other week. The nurses say most people only get some nausea with these drugs perhaps a bit worse on weeks together. Will be praying it stops cancer and does not flare his psoriasis. The clinical trial is nation wide at several sites, luckily one at UCD where we go. Trial,pays for drugs and Medicare for the medical care. Unsure how long he will need the drugs, but first we have to see if they can halt growth of cancer. It's going to be a busy next week: labs Monday , visit nurse practitioner Tuesday so Dr can authorize final approval for trial, and Wednesday at 9 nurses put in IV, draw trial labs, and chemo begins. Hopefully on time because we need to be at audiology by 2 for hearing test then to ENT Dr to evaluate results of audio gram. Long daupy, then home through rush hour probably about 4. Fortunately he will not need chest tube drained that day.
Velda
MandysMom
 
Posts: 4358
Joined: Sat Sep 14, 2013 8:26 pm
Location: Roseville CA

Re: Update

Postby avalen » Sat Dec 16, 2017 11:05 am

Prayers for this treatment to bring good results
Somewhere with Ava and Maggie
Image
User avatar
avalen
 
Posts: 9430
Joined: Mon Jul 14, 2008 5:13 pm
Location: Apache Junction Arizona

Re: Update

Postby Irmi » Sat Dec 16, 2017 11:10 am

Velda, wishing you & Mel the very best and praying for good outcome.
User avatar
Irmi
 
Posts: 3180
Joined: Tue Feb 08, 2011 6:27 pm
Location: Central Florida

Re: Update

Postby Bethers » Sat Dec 16, 2017 11:18 am

Velda, here's hoping Medicare approves and that this WORKS!
Beth
“Dare to live the life you have dreamed for yourself. Go forward and make your dreams come true.” ~ Ralph Waldo Emerson ~
"He who treasures the small things in life has found the path to true happiness"
Image
User avatar
Bethers
 
Posts: 17807
Joined: Sat Jul 12, 2008 9:00 pm
Location: Arizona

Re: Update

Postby retiredhappy » Sat Dec 16, 2017 11:58 am

Velda, you have my prayers.
Karen West
Baxter, Sophie, & Bailey


..

Image
User avatar
retiredhappy
 
Posts: 4438
Joined: Sun Jul 13, 2008 9:59 pm
Location: Kerrville, Texas

Re: Update

Postby Rufflesgurl » Sat Dec 16, 2017 12:31 pm

Velda praying this will be the right mix so you and Mel can have a Merry Christmas!!

Linda
Rufflesgurl
 
Posts: 1943
Joined: Thu Sep 17, 2009 1:59 pm

Re: Update

Postby bluepinecones » Sat Dec 16, 2017 1:00 pm

Sending good wishes for success
The only major handicap in life is a bad attitude!
User avatar
bluepinecones
 
Posts: 4870
Joined: Mon Jan 26, 2009 1:58 pm
Location: North AL

Re: Update

Postby MandysMom » Sat Dec 16, 2017 1:09 pm

Thank you everyone. It's been a long haul but if this turns out to be the answer it will be worth it. Merry Christmas everyone.
Velda
MandysMom
 
Posts: 4358
Joined: Sat Sep 14, 2013 8:26 pm
Location: Roseville CA

Re: Update

Postby Liz » Sat Dec 16, 2017 4:00 pm

From personal experience, a port will make it much easier for him with frequent treatments. Prayers for positive outcome and little or no side effects.
Liz
Image
https://wheresliz2018.blogspot.com
"Life in the presence of God...is a life to be enjoyed every moment of every day." A. W. Tozer
User avatar
Liz
 
Posts: 7563
Joined: Mon Jul 14, 2008 9:22 am
Location: Traveling in the western states in 2016

Re: Update

Postby grammynmaggie » Sat Dec 16, 2017 5:50 pm

Send ing prayers..
User avatar
grammynmaggie
 
Posts: 2615
Joined: Thu Sep 13, 2012 6:10 pm
Location: Greenville PA and Melbourne FL

Re: Update

Postby snowball » Sat Dec 16, 2017 11:13 pm

praying of course hoping as well that it will be the answer!!!
sheila
snowball
 
Posts: 9495
Joined: Mon Jul 21, 2008 10:14 pm
Location: we full time right now in Quartzsite AZ

Re: Update

Postby monik7 » Sun Dec 17, 2017 5:30 pm

Mel and you will be in my prayers Velda. Praying all goes well.
Sandi
Bindi (Maltipoo) and Abby (Shih Tzu/Poodle)
Image

"Without the animals men would die of a great loneliness of the spirit." ~ Chief Seattle
“A dog can change the way you see the world.” ~ Anyone who has a dog
User avatar
monik7
 
Posts: 3016
Joined: Sat Aug 04, 2012 7:49 pm
Location: San Francisco Bay Area

Re: Update

Postby chalet05 » Sun Dec 17, 2017 6:40 pm

Velda, hoping this is the answer to a lot of prayers!
Anita
User avatar
chalet05
 
Posts: 3037
Joined: Sat Aug 27, 2011 8:47 pm
Location: Leavenworth, Washington

Re: Update

Postby MandysMom » Mon Dec 18, 2017 2:53 am

Thank you everyone! The support means so much.
Tomorrow morning we hope to hear by 11 that Medicare has approved some can go for blood work as the precursor to chemo start.
Velda
MandysMom
 
Posts: 4358
Joined: Sat Sep 14, 2013 8:26 pm
Location: Roseville CA

Re: Update

Postby BirdbyBird » Mon Dec 18, 2017 1:05 pm

I'll be thinking of you both as you continue this journey.
Tina and the furry companions...Lark, Audrey and Jane
User avatar
BirdbyBird
 
Posts: 8572
Joined: Mon Sep 29, 2008 9:43 am
Location: Southwest Ohio

Next

Return to General Talk

Who is online

Users browsing this forum: No registered users and 20 guests