The best laid plans......

[carold]

Very sad to read about your daughter. Yes, situations can change in a blink of an eye. Glad to hear you are there to fight for her care when she cannot and that people are there for her children who must be at a loss. Will keep you all in my thoughts. carold

[Pooker]

Such a hard time for all of you. I hope you check into the forum from time to time to see how many friends truly care, and to keep us posted on your daughter's progress.

Pooker

[bluepinecones]

Thank you for checking in. So sorry to learn about the situation. Sending positive thoughts and prayers for you and family.

[grammynmaggie]

So sorry for this tragedy that has struck you and your family I'm praying for you and your daughter her children and boyfriend everyone involved I'm praying that she gets the proper help and praying that God will heel her...

[gypsyrose1126]

So VERY sorry to hear about your daughter. Even more difficult when there are small kids in the family. I will keep your family in my prayers and best of luck in the future. Hopefully, there will be some state programs that she will qualify for.

[SoCalGalcas]

Dear Solowalkin, what a horrible accident to happen to your daughter. I'm sending good vibes and white light to surround your daughter and her family. You can be sure we on the Forum are keeping you and daughter in our thoughts. Write of her progress once and awhile and let us know how she is improving. We Care! Love you, lyn

[Colliemom]

As the others have said, so sorry to hear of this. My thoughts s and prayers are with all of you. Please keep us informed. Your daughter is so lucky to have you as her advocate.

[Solowalkin]

Hi Everyone, just a short drive by with an update on my daughter. She is doing pretty well, going to OT/PT generally twice a week and she also goes to a place called CORE http://coreflorida.com/spinal-cord-injuries/ which she really likes, she calls it crossfit for quads
She tries to keep her spirits up but it is pretty hard sometimes, I try to encourage her not to be so impatient as she is only 5 months into this new normal so she can't expect to improve over night. This is a long grueling journey we are on but she can do anything she puts her mind to. She figured out how to put her contacts and makeup on by herself (I help to open a few things but working on that) the first time she tried and has improved with ea new time. Haven't figured out a way for her to get the contacts out on her own yet but we will figure something out there as well. Having no use of fingers is a huge huge challenge for sure but it is amazing what some imagination and determination and just plain stubbornness can accomplish lol.
Unfortunately we are still battling respiratory issues from when the hospital down in Miami damaged her cartilage when they trached her. So far we have avoided a permanent trach and the tracheal resection but it hasn't been easy and she has been hospitalized a few times to have her airway opened, she has one more procedure a week from this Friday then we hope the airway will stay open, at least for a good while.
As for me, I take it just a day at a time, deal with depression, burnout, physical exhaustion as I can and just keep plugging along taking care of her. The boyfriend is still in the picture which affords some help, I hope it lasts but if not we will deal with that as well. Her kids are doing amazingly well! I'm working on trying to get some part time personal care aides lined up so we can get some relief as well as backup if one of us is too sick to care for her.....it's a very slow process.
I am working on trying to figure out a way to get the TT (bigfoot) I bought just before all this happened transported from Wa state to my home in Fl.....we will see. I really don't want to sell it yet, who knows I may still get a chance to use it some, maybe not yet the way I wanted but some.
I hope you all have had and continue to have a good holiday and a great year to come. I will update more as I can

[Bethers]

Thanks for the update. I've kept you both in my thoughts and prayers and will continue to do so. Hugs to you and please tell your daughter I'm amazed and proud of her and her perseverance. She's strong and proving it.

[Carolinagal]

I am so sorry to read about this tragic event for your family !! I have no useful info to pass on. I can only add your daughter and you and others in the family to my prayers. Most of all I'm hoping you can line up enough care takers to help. Caring for a loved one is so hard, mostly emotionally and the worry. I am soooo sorry !!

So pleased to hear your daughter is putting real effort into her therapy, she will do well, try not to worry much Mom.

CArol

[BirdbyBird]

Thank you for sharing your update.....I had been thinking about you, especially now that I mad it to FL. Will continue to keep you in my thoughts and may you find some connections to help get the support for care giving that will help keep you all healthier.