Health issue, not so good news
Posted: Sat Jan 31, 2009 9:25 am
Well, here it is......................................................... Gonna have lots of
doctor appts coming up, getting all the little ducks in a row and start another round
of chemo for my liver. There, I've said it! To back up the horse a little, back
in 1978 I had a hysterectomy and was given contaminated blood (4 units) no testing
done in those days (not until 1982). I came up with hepC and did a round of treatment
4 years ago, killed the virus but it came back which it sometimes done. Not surprising
really, they pulled me off the treatment when it started attacking my thyroid. Option
is to kill the thyroid and put me on thyroid medication and then do the treatment.
Next appt is later February. Its not something I can ignore, lost one friend who refused
treatment and died 6 months later from liver cancer, and lost another friend who died
from it because she didn't take care of her liver after it kept coming back. (she did
two rounds of treatment and was VERY sick) I at least take care of myself and don't
drink, and eat healthy. I am determined to kick this.
If anyone has been through this then you know what I'm facing. Its not like cancer
chemo where I'm gonna throw up and get bald but I will be very sick. The medicine
has lots of side effects. I've been visiting my support group and reminding myself
the different side effects I had. The one I really hated was the horrible psoriasis rash
I got all over my body and then of course the thinning of the hair, and the awful fatigue!
It was a chore really to climb in my van and just go to the store for a few groceries.
Maintaining my job was all I could manage and I took every wednesday off and slept.
The treatment is a year long, last time I did 7 months when they finally pulled me off
of it. The gastro doctor was not very supportive so I have since found another one that
I feel will help me better. At least this time I know what to ask and ask for. Last time
I did this I was in a "roommate" situation so I did have a little help but this time I don't
so I'll be relying more on my daughter. I have a few friends willing to help with the dogs
as they will need a little more exercise than I will be able to give them. I'm actually
hoping to wait one more year before I start treatment but my next visit will determine
that. If I start the treatment this year, I want to start may or june cause the first few
months will go ok and I can manage my job for summer school on a 4 day normal
work week. They don't let us use sick time during the summer so by the time I start
getting sick from the medicine the normal school year will have started and I can use
sick time when I need extra rest.
Ok, now that I have that off my mind, I feel better just getting it out in the open.
doctor appts coming up, getting all the little ducks in a row and start another round
of chemo for my liver. There, I've said it! To back up the horse a little, back
in 1978 I had a hysterectomy and was given contaminated blood (4 units) no testing
done in those days (not until 1982). I came up with hepC and did a round of treatment
4 years ago, killed the virus but it came back which it sometimes done. Not surprising
really, they pulled me off the treatment when it started attacking my thyroid. Option
is to kill the thyroid and put me on thyroid medication and then do the treatment.
Next appt is later February. Its not something I can ignore, lost one friend who refused
treatment and died 6 months later from liver cancer, and lost another friend who died
from it because she didn't take care of her liver after it kept coming back. (she did
two rounds of treatment and was VERY sick) I at least take care of myself and don't
drink, and eat healthy. I am determined to kick this.
If anyone has been through this then you know what I'm facing. Its not like cancer
chemo where I'm gonna throw up and get bald but I will be very sick. The medicine
has lots of side effects. I've been visiting my support group and reminding myself
the different side effects I had. The one I really hated was the horrible psoriasis rash
I got all over my body and then of course the thinning of the hair, and the awful fatigue!
It was a chore really to climb in my van and just go to the store for a few groceries.
Maintaining my job was all I could manage and I took every wednesday off and slept.
The treatment is a year long, last time I did 7 months when they finally pulled me off
of it. The gastro doctor was not very supportive so I have since found another one that
I feel will help me better. At least this time I know what to ask and ask for. Last time
I did this I was in a "roommate" situation so I did have a little help but this time I don't
so I'll be relying more on my daughter. I have a few friends willing to help with the dogs
as they will need a little more exercise than I will be able to give them. I'm actually
hoping to wait one more year before I start treatment but my next visit will determine
that. If I start the treatment this year, I want to start may or june cause the first few
months will go ok and I can manage my job for summer school on a 4 day normal
work week. They don't let us use sick time during the summer so by the time I start
getting sick from the medicine the normal school year will have started and I can use
sick time when I need extra rest.
Ok, now that I have that off my mind, I feel better just getting it out in the open.