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Kind Of Scared

PostPosted: Tue Sep 01, 2015 1:26 pm
by monik7
I've debated on whether to post this or wait until maybe the end of the week. However, I've found it very helpful to post here among so many friends so I'm going for it.

Yesterday I had an appointment with a new rheumatologist for my Rheumatoid Arthritis. It's been very hard the last 6 months to get an appointment because of my RV trips and scheduling rules at Kaiser. When I complained to the RN doing my most-recent infusion, she took it upon herself to contact the head of Rheumatology regarding my problem with getting an appointment and my worsening symptoms. They gave me an appointment for yesterday with the head of Rheumatology.

So yesterday she did a thorough exam and scheduled me for an injection to help worsening pain in my right hip and also some x-rays. She called this morning to tell me they want to do a bone scan because the x-rays showed a number of lesions on my hip. All this morning I've been on the Internet and finding there is a chance of bone cancer which is incurable. Apparently it is not a good sign if there are multiple lesions. I'm trying to stay calm. I'll have the bone scan on Thursday morning. It will involve an injection of a radioactive material, then I'll have to wait about 3 hours when they'll do the scan. My doctor said there could be a diagnosis late Thursday or even though she'll be off Friday, she will check in and hopefully be able to let me know by Friday.

Lately I've been thinking a lot about cancer because my best friend was diagnosed with breast cancer 2 years ago. We've known each other since I was 12 and she was 13 in 8th grade. She was treated with chemo and radiation. When I got back from the Oregon GTG she told me they had found her cancer had spread to her bone marrow. She has been given 6-12 months to live or 2 years if she's lucky. If I get a cancer diagnosis I don't know how I'll be able to help her and for sure she can't help me.

Your prayers would be appreciated for both of us.
Sandi

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 1:45 pm
by Acadianmom
So sorry to hear this. Praying it's not cancer but something treatable.

Martha

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 2:08 pm
by mitch5252
Acadianmom wrote:So sorry to hear this. Praying it's not cancer but something treatable.

Martha

..
What she said.

The waiting is SO hard.
..

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 2:14 pm
by PeggyinCT
Monik, it's okay to be a little scared. The thought of cancer and the waiting for results is a scary thing. Try to keep positive and know that all of us are sending you love and positive energy. Peggy

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 2:15 pm
by grammynmaggie
So sorry to hear about this my prayers are with you take care of yourself & keep us posted...

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 2:19 pm
by Bethers
So sorry to hear, and I definitely understand the being scared. Big hugs to you and here's hoping for a good diagnosis.

But whatever the diagnosis, yes you can help each other whether it be doing for the other or just supporting each other in the only ways you can. Loving each other.

I'm, and I'm sure all of us, are here for you - so talk it through - even if the best we can do is listen, we'll continue to listen and worry with you.

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 2:51 pm
by Queen
Sending you warm healing energy and hoping it's just something simple.

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 3:51 pm
by BirdbyBird
Will be thinking of you theses next days and hoping for the best. Scared is okay, but remember to save your energy for things that matter and things you can control...... :)

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 5:12 pm
by gypsyrose1126
So sorry to hear, sending healing prayers your way.

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 5:20 pm
by mtngal
Oh so sorry to read this! Glad you got to talk about current concerns though and have a good doc following through with you. One day at a time for now. (And like they all said, it's ok to be scared).

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 5:34 pm
by Rufflesgurl
Sandi - It's perfectly OK to be scared whenever something unusual is seen. Prayers for you and for the best results! You know I'm ready to listen. Take care of you!!

Linda

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 6:17 pm
by beazle
Such scary news! I'll be thinking of you and praying over the coming days. Know that the God of the universe is by your side whatever the outcome. The women on this forum are a caring bunch and will be with you in thought and prayer this week.
Eileen

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 6:29 pm
by cnq50b
I'll be keeping you in my prayers as I drive out west - lots of time to think & pray. We're all here for you no matter what the news is - glad you told us.
Take extra good care of yourself.
Hugs, Catherine

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 6:49 pm
by gingerK
Sandi, I'm adding my prayers for you too, and I'm glad you felt you could share this with us. We are here whenever you need to talk; we will listen and pray.

Re: Kind Of Scared

PostPosted: Tue Sep 01, 2015 7:14 pm
by avalen
totally understand being scared, glad you decided to say something cause its more scary when your the only one being scared, now we can all pray and be scared with you. Its what friends are for.